Wednesday, 20 July 2016

9000 Miles - Pendulum

Well over 9,000 miles...
Lyric:- 'It's 9,000 miles back to you.' - Swire Thompson

Song Choice:- A perfect track from Aussie Band, Pendulum. Take a listen yourself and if you've ever been in a similar position to me where your mobility is suddenly taken from you, you'll understand how I'm feeling right now. It's not like being injured as there's always a known sort of timeframe to get your head around.

With Chronic inflammatory demyelinating polyneuropathy (CIDP), there's none. You just have to wait and wait, whilst the world and everyone around you races by as your nerves slowly, and I mean s-l-o-w-l-y start to wake up and grow about 1mm a day. Mine have just come out of a mini ice-age and are starting to thaw out.

But that's ok as any improvement is a good one. This isn't about walking or running yet, it's about functioning as a human being and being able to wash, use the bathroom and being able to feed myself. Conquering these feats are marathons just on their own and I'm making some ground on them and trying to be as independent in hospital as much as I can, whilst feeling safe knowing I have the experts at my tingling fingertips 24/7.

I have at least a few more weeks’ intense work here to do before I'm fit enough for rehab in another local hospital before we can work out a long term plan to eventually get me walking unaided. The amazing 'Crowd Funding' will provide the best possible outcome for me and again, I'm staggered by all of your generosity and good wishes. The total is a whopping £22, far.

As for 9,000 miles, it feels like I've done that in just two weeks.

My thoughts are very positive and I've enjoyed sharing folks success at the recent 'Race to the Stones'. It reminds me of what I've done in the past and hopefully what I'll be able to do again one day. I'm only too glad I can appreciate how lucky I've been and I am as lots of folk never get to feel the serenity that I feel right now, lying typing away in a hospital bed.

Enjoy the Summer while it lasts...I'm going to.

Rory Coleman
976 Marathons - 241 Ultras - 13 Marathon des Sables - 9 Guinness World Records
1 Desire - To Walk Again


  1. Good to hear your improvement is beginning Rory. My friend George Reid is still battling hard against CIDP so I have some idea of the size of fight you're in. All the best mate.

  2. I have not yet had the pleasure of meeting you. We were planned back a few months. But I've followed your journey. I'm inspired by your strength. One day we will meet. You'll put me through my paces as you promised. I look forward to that day. Stay strong. Believe ! You're an inspiration to many.

  3. Good to hear your progress sweetie. Keep as positive as you can x