 |
| Well over 9,000 miles... |
Lyric:- 'It's 9,000 miles back to you.' - Swire Thompson
Song Choice:- A perfect track from Aussie Band, Pendulum. Take a listen yourself and if you've ever been in a similar position to me where
your mobility is suddenly taken from you, you'll understand how I'm
feeling right now. It's not like being injured as there's always a known
sort of timeframe to get your head around.
With Chronic inflammatory demyelinating polyneuropathy (CIDP), there's none. You just have to wait and wait, whilst
the world and everyone around you races by as your nerves slowly, and I mean
s-l-o-w-l-y start to wake up and grow about 1mm a day. Mine have just come
out of a mini ice-age and are starting to thaw out.
But that's ok as any improvement is a good one. This
isn't about walking or running yet, it's about functioning as a human
being and being able to wash, use the bathroom and being able to feed myself.
Conquering these feats are marathons just on their own and I'm
making some ground on them and trying to be as independent in hospital as
much as I can, whilst feeling safe knowing I have the experts at
my tingling fingertips 24/7.
I have at least a few more weeks’ intense work here to do
before I'm fit enough for rehab in another local hospital before we can
work out a long term plan to eventually get me walking unaided. The amazing
'Crowd Funding' will provide the best possible outcome for me and again,
I'm staggered by all of your generosity and good wishes. The total is a whopping £22,988...so far.
As for 9,000 miles, it feels like I've done that in just
two weeks.
My thoughts are very positive and I've enjoyed sharing folks
success at the recent 'Race to the Stones'. It reminds me of what I've
done in the past and hopefully what I'll be able to do again one day. I'm
only too glad I can appreciate how lucky I've been and I am as lots of folk
never get to feel the serenity that I feel right now, lying typing away in
a hospital bed.
Enjoy the Summer while it lasts...I'm going to.
Rory Coleman
976 Marathons - 241 Ultras - 13 Marathon des Sables - 9 Guinness World Records
1 Desire - To Walk Again
Good to hear your improvement is beginning Rory. My friend George Reid is still battling hard against CIDP so I have some idea of the size of fight you're in. All the best mate.
ReplyDeleteI have not yet had the pleasure of meeting you. We were planned back a few months. But I've followed your journey. I'm inspired by your strength. One day we will meet. You'll put me through my paces as you promised. I look forward to that day. Stay strong. Believe ! You're an inspiration to many.
ReplyDeleteGood to hear your progress sweetie. Keep as positive as you can x
ReplyDelete